It’s a constant battle between ourselves and the government; who is in charge? Who gets to run what and who gets the say over what should, could, won’t and will be done?
I believe there can be good in what the government provides for those in need but so often they find themselves caught up in so many rules and regulations that they end up hurting those they aim to help.
Thank you, but….
Some of you may already know from previous blogs that my son is right where he should be in some areas, well above average in many, but significantly below average in speech. He will be 2.5 years old on Christmas Eve and he cannot say even 15 words. There’s only a handful of words he can say in full without dropping the ending.
Through the government, bless their hearts, you can get free therapy for your child. In Tennessee, once they age out at 3 years old, they can no longer be provided this service. You can hire a professional speech therapist but sometimes that isn’t even an option (financially) for some families.
We started this free service back in September (if not sooner). We’ve met over and over and over again with various different people that work in this system and I couldn’t tell you who is who or where they work or what part they play.
They ask the same questions.
They get the same answers.
They watch Jackson play with the same toys.
They watch how he interacts and it’s…you guessed it… always the same.
Nothing but wasted time and paperwork, it seems. Meanwhile my son continues playing with children who cannot understand why he won’t talk. They ask their parents in front of us, “why won’t he play?” or “why won’t he talk?” or “He doesn’t talk. I don’t know why.” and my favorite one yet, “I think he speaks Spanish”. (Jackson has his own language and it honestly does sound like a foreign language.)
I’m thankful you tried.
Now, I’m not really upset with the therapist and the case workers. I know they’re swamped. I know they’re underfunded. I know it’s a very thankless job a lot of times. I feel for them. I see you. I hear you. I’m not angry with you.
What I am? Is a mother who desperately wants her son to tell me what he’s thinking in a way that I can understand. I’m a mother who wants to be able to respond to my son so that he knows I’m interested in every word that touches his lips. I’m a mama bear who’s trying to stay patient and kind because you’re not the ones keeping my son from progressing.
So while I’m thankful you tried – you’re still trying – to get my son the help he needs, I’m sad to see a good system with good people and good hearts falling short. Maybe there’s no current way to fix it. Maybe this is the best it can be. I sure hope not. I sure hope there aren’t other people out there like us, waiting 5+ months to get any sort of help, knowing they’ll be aging out in 6 months.
I plan to write whomever I can about this. I don’t want other mamas and their cubs to have this hanging over their hearts as well.
If you happen to have any information about this, advice or just encouragement, please feel free to comment below.
Thank you, lovelies.